5 Things not to say to a person with bipolar disorder

Some of you have requested that I post more about my experiences with living with bipolar disorder.  So I figured this year I would try to write about it at least once a week (maybe more depending on the week).

I will say that it is much easier to write and talk about these things when I feel healthy and that the disorder is in control.  The sad part is that just because I’m healthy now, doesn’t mean that I don’t have it or that it will magically go away.  I like to think of it as it’s “in remission”.  Hopefully it stays way but just like cancer, I need regular checkups with my Dr. And for me personally, making sure I take my medication and always strive to keep up the 10 habits.

There can also be many side effects that never go away.   And it doesn’t mean that things that people say (well-meaning) don’t affect me in a negative way.

So today I thought I’d give you an idea of what NOT to say to someone who has bipolar disorder.

1. You seem so normal. This is probably the one that I hear the most and it’s frustrating because just because I look or seem normal doesn’t mean that I’m not struggling.  Plus, you never know if someone is between cycles of mania or depression.  And some people are just really good at hiding it or wearing a mask.  Think about how this would feel if you said it to someone with cancer!  It is a lack of empathy in my honest opinion.  A better way to approach this would be to say.  “You seem like you’re feeling good at the moment, what can I do to support you?”  Just showing you care and recognize it as a disorder, will go a long way.

2. I saw so and so the other day and she was acting so crazy, I think she’s bipolar! First of all, we are NOT the disorder, we HAVE the disorder. Second, making assumptions that someone has a disorder just because of their actions is rude and disrespectful.

Remember how I talked about your manner of language yesterday?  When you say it like that, it makes us feel like if you think that about them then you must think we are totally bonkers!  It’s a generalization that doesn’t help the situation.  And most often just makes us feel worse.  A better way would be to say, “I saw so and so the other day, she looked like she was really struggling, it’s possible she could be suffering with a mental illness.  Is there anything that you would suggest that might help?” Be genuine.

3.  Come on let’s go shopping, you just need to get out. It’s not that easy to just snap out of it.  This is a real honest struggle for those who suffer, and just getting out doesn’t make it go away automatically.  Most often it feels physically impossible to do the easiest of tasks. However, I will say that continued support is extremely helpful.  Check in often ask sincerely how they are feeling that day and if they might like to get out?  And then be supportive and understanding if they decline.  Again a little bit of empathy can go a long way.  Genuinely care about the person and do not make it seem like what we are going through is fake or brought on by something we are doing or not doing.  Don’t give up on us.

4. You are acting crazy, phsycho, deranged, out of control, bonkers, or any other negative terms used to describe someone who is probably really struggling to stay in control.  Again, just be careful of generalizations and assumptions.  Be kind. Be kind. Be kind.

A better way to handle this situation would be to gently say, “I feel like you are not quite your usual self today.  Is there anything I can do to help?”  Be prepared for a person to become defensive.  And if that happens, it’s best to just give them time to process your observation.  The last thing they want to have happen is to have the disorder sneak up on them.  Pointing out an observation and then giving them time to adjust and process would be a good way to handle it.  And again, lots and lots of support.  Don’t just walk away and never come back to it. Give it time and then try to sort it out when they are ready.

* A note to the person who has bipolar: Personally, when this has happened to me, I find it therapeutic to document how that made me feel in a journal, just let it all come spilling out on paper.  It saves me from saying something that I will probably regret.

5.  And finally… You’re just making all of this up to get attention. While it may seem illogical to you, it usually makes perfect sense to the person with bipolar.  Bipolar is a disorder of the brain, so it makes sense that sometimes certain behaviors or statements may seem irrational.  When observing behavior that doesn’t seem normal, brushing it off with blanket statements like this is NOT helping. Give the person validation by saying something like,  “I understand that what you are seeing/saying/doing is very important to you, what can I do to help you with this?”  Again you may encounter some defensiveness, but be gentle.  Yelling and trying to make your point is actually just a way of escalating the symptoms they may be experiencing.

I hope that helped a little and made you think about your words and the way that you support someone who is struggling with bipolar.  It’s very difficult for a loved one to see someone they love struggling and not acting like themselves.  Give each other grace and be gentle.  And encourage them in the kindest way, to get the help they need.  They need your support more than ever when times are tough.  Checking in regularly and genuinely is a great way to help someone who has bipolar disorder.  And above all, never, never give up on them!

XO Wendy

What does a manic episode look like? Part 1. | Bipolar disorder

I have been putting off writing this post.  It’s not easy to write about something that is so personal and risk being judged or labeled because of the stigma surrounding mental illness that still exists.  However, I feel so compelled to share and educate people on what those with mental illness really struggle with, Bipolar in particular.  Then maybe we can remove that stigma together.  So today I am going to share these deeply personal experiences in the hopes that it can help someone who thinks they might have Bipolar or maybe friends and family who may be seeking answers.

It’s important to understand that this illness manifests itself in many different ways for different people.  I can only speak from my own experience and it’s super important that if you or someone you know, think you might be experiencing some of the symptoms that I am going to share, that you seek the advice and counsel of a trained Psychiatrist or Psychologist to be properly diagnosed.

What I am going to share is the way that a manic episode manifests in me.  The easiest way that I know how to describe what happens for me is to give you bullet points.  So Here are 5 ways that a manic episode starts to show for me.

*One thing that is important to mention about Bipolar and mania is that sometimes the one experiencing it can’t see it when it’s happening, but someone close to you can.  So having support from loved ones during times like these is especially important.  Although, it can also be frustrating and draining for those witnessing it and trying to help.  Don’t give up on us.

So here we go:

  1. Creativity spike or over excitement.  One of the first signs for me that a manic episode is coming on is that I start to feel kind of a pressure build up of creative ideas.  I will start feeling really bold and strong like I can accomplish anything.  Which really isn’t that strange because a lot of people are list makers and goal setters and go getters.  But what this looks like for me is list making and goal setting on steroids, lol.  It’s like I just keep adding more and more to the list and I just feel super powered. And I start attacking each item on my list and I just can’t let it go until it gets accomplished.  I get really exuberant about everything so I talk louder and faster and more excited than usual.  Normally I’m a pretty quiet and reserved person.  So this is pretty out of character for me.
  1. Can function on very little sleep.  I feel like the energizer bunny.  I am so on fire that I can’t shut my mind down at night and I start to lose sleep.  This isn’t just a few hours, this is like pulling all-nighters for several days in a row.  It’s very frustrating because I know I NEED to sleep, but I just can’t shut my brain off.

In one of my recent episodes, when I was through it, I had a huge bruise on my chest from where I kept poking my self.  In my manic mind, I felt like there was a button that I could push that I could just turn it all off.  So I just kept poking my self trying to shut all the thoughts off.  I know it sounds crazy but remember this is a disease or disorder.  So if we think of it like a disease, it would be similar to a diabetic having insulin shock.  It’s very serious and shouldn’t be taken lightly.

3. Rapid weight loss.  This is caused by a lack of eating normally because I think I have to get so much done I don’t stop to eat.  I actually forget and I am not even hungry.  Normally, I am very aware of when and what I eat and how much water I’m drinking.  I’ve learned to be very careful about this over the years.  I’ve been reading a lot lately about how the brain and the gut are connected. There is so much that happens in the gut that can change the way the brain functions.  So it makes sense that cutting off the nutritional supply that your brain is used to would cause significant changes in your body.

4.  Everything resonates. So this symptom is where it really goes off the rails.  I start to see signs in everything.  I believe the technical term for it is grandiose or delusional thinking.  So for example I might see a billboard and say something like “Oh, I get it now, that’s what this all means.”  Or “Oh my goodness this is so big, it all makes sense now.”  I start to say things that make complete sense to me in my head, but when they come out of my mouth it’s making no sense at all.  At one point I start to think that people can or should be able to read my mind.  So I’ll just look at them like I’m telling them something and expect them to understand. This is when it’s getting really scary and on the verge of the episode.  Usually once it’s to this point, a manic episode can not be avoided.  So the idea is to recognize the early signs above, or someone close to you recognizes what’s happening and points it out so you can bring yourself back down.  Usually you can’t do that on your own, you need the help of someone else making sure that you are getting enough sleep and that you are eating and staying hydrated, etc.

5.  Senses overload.  So for me personally, this is when I’m in full blown manic mode.  It’s like all 5 of my senses are extra sensitive.  I hear everything louder.  Everything around me seems amplified.  From the voices of people around me to the natural noises of traffic and hustle and bustle.  And then I feel like everything is interconnected like I mention in number 4.  I feel like I can see things more clearly.  I feel things more fully.  And my talking becomes very chatty.  I have to talk about everything I’m seeing, hearing and feeling.  So it can be very annoying to someone around me.  I just can’t shut up, lol.  I joke about it, but it’s a very scary place to be.  In fact the other thing that happens at this point is that I get the worst headache.  My head is pounding so hard that I think I’m gonna die.  It’s just like massive overload of all the senses.

The way that I always try to explain to someone what it’s like, is to compare the body to a computer.  When you keep opening window after window and giving your computer more jobs to do, it finally just freezes up and won’t do anything.  The only way to fix it is to do a reboot.  It’s kind of the same way with me.  Once I get to that point, my body just shuts down and has to be rebooted.  I imagine it’s like a short circuit in the brain. My brain is just saying “enough is enough” I have to shut this baby down.

Usually at this point I am pretty much out of it.  I can’t function at all.  It really is like my body just goes into freeze mode and is waiting to be rebooted.  It’s super scary because I literally have no control over my body at this point.  As I have mentioned in a previous post, I have only gotten this far 3 times in my life where I have had to be hospitalized.  But looking back now I can see many times in my life where I was in the manic zone but then managed to work myself out of it, usually by sleeping it off.

So wow! Yes, that is what a manic episode is like for someone who is experiencing it.  There are many more symptoms that manifest for other people such as uncontrolled spending, excessive drinking, or drug abuse, extreme rage, etc.  But the 5 symptoms described above is how it works on me.  And like I said in the beginning, I can only speak from personal experience. This is why I mention so much that it feels like being “broken”.  It literally is like the brain is broken.

I know this can be extremely hard for a loved one to hear and witness.  But just know that it is even harder for the person who is going through it. I hope this has been insightful and helpful for those who have Bipolar or those with friends or family.  I can’t stress enough how important it is for you to get the proper help and diagnosis.

I want to leave this on positive note though, because there is help and a lot of good things that can come from this. I have been so blessed to have had great support in my life and have been able to get the help that I’ve needed.  If you have found this helpful or insightful, please like and share.  And if you want to know more, I am happy to share my experiences.  I believe we are all here to help each other on our journeys through life.

XO Wendy

P.S.  Part 2 coming soon.  A different perspective.

Update:  In this post I talked about how my husband was going to be posting about Bipolar from his perspective or rather what a manic episode looks like to someone who may be experiencing it with their spouse, child, or loved one.  Turns out, it was much harder for him than he originally thought it would be.  It’s extremely hard for family and friends to understand what is happening with you and to see you that way  It isn’t exactly a walk in the park for.  So I let him off the hook.  I think from this post you can learn a lot about what it’s like.  The one conclusion that we did come to is that you really have to learn to trust each other.  The person having a manic episode, usually feels like they are just fine, while the loved one can see it more clearly.  So it’s important to trust your loved one and get help if you can, whether that is through your Dr. or working out a plan beforehand with your spouse of how you’ll handle it.